Cómo citar
Duarte Quilao, T. (2018). Human Suffering: An Integrative Literature Review. Cultura Del Cuidado, 15(2), 67–79. https://doi.org/10.18041/1794-5232/cultrua.2018v15n2.5112
Resumen
Abstract Introduction: Suffering is a universal multifaceted phenomenon hard to define and often connected to pain. Suffering is not a homogeneous concept. Instead, suffering is a diffused term that includes innumerable ways of dealing with depression, pain, loss, and adversity. Suffering is described as a response or behavior recognized by introspection or observation of the behavior of the person and his/her environment. Objective: The purpose of this article is to describe the role of the advanced nurse practitioners when dealing with the construct of suffering and to present a review of literature related to the human suffering experience. Methods: The CINAHL Complete, PubMed, One Search, MEDLINE, PsychInfo, ProQuest Dissertation and Theses Global databases were search using the keywords suffering, experiences, meanings and perceptions of suffering. Search limits included peer-reviewed articles published in the English language from 1980 to 2016. Results: A total of nine qualitative and five quantitative studies were reviewed. Three major themes were identified: the dimensions of suffering (physical, psychological, social, existential and ethical), enduring suffering and measuring human suffering, and perceiving another’s suffering by using reliable and valid instruments.
Citas
1. Abraham, A., Kutner, J. S., & Beaty, B. (2006). Suffering at the end of life in the setting of low physical symptom distress. Journal of Palliative Medicine, 9(3), 658-665.
2. Alkrisat, M., & Dee, V. (2014). The validation of the coping and adaptation processing scale based on the Roy adaptation model. Journal of Nursing Measurement, 22(3), 368- 380
3. Arman, M., Rehnsfeldt, A., Lindholm, L., Hamrin, E., & Eriksson, K. (2004). Suffering relatedto health care: A study of breast cancer patients’ experiences. International Journal of Nursing Practice, 10, 248-256.
4. Adunsky, A., Aminoff, B. Z., Arad, M., & Bercovitch, M. (2008). Minisuffering state examination: Suffering and survival of end-of-life cancer patients in a Hospice setting.
5. American Journal of Hospice &Palliative Medicine, 24, 493-498.
6. Baines, B. K., & Norlander, L. (2000). The relationship of pain and suffering in a Hospice population. American Journal of Hospice and Palliative Medicine, 17(5), 319–326.
7. Braband, B. (2009). The suffering journey: Lived experiences of persons who have endured life-impacting events. Doctoral dissertation. ProQuest, UMI Number: 3398508.
8. Baumann, S. L., Lee, O. J., & Im, S-B. (2013). Stories of suffering with leprosy and cancer in Korea. Nursing Science Quarterly, 26(3), 274-279.
9. Baumann, S. L. (2016). The living experience of suffering: A Parse method study with older adults. Nursing Science Quarterly, 29(4), 308-315.
10. Berglund, M., Westin, L., Svanström, R., & Sundler, A. J. (2012). Suffering caused by care-elderly patients’ experiences from hospital settings. International Journal of Qualitative Studies on Health and Well-being, 7, 18688.
11. Cassell, E. J. (1982). The nature of suffering and the goals of medicine. The New England Journal of Medicine, 306(11), 639-645
12. Chapman, C. R., & Gavrin, J. (1993). Suffering and its relationship to pain. Journal of Palliative Care, 9, 5-13.
13. Currow, D., & Hegarty, M. (2006). Suffering–At the bedside of the dying. Journal of Religion, Spirituality & Aging, 18(2–3), 123–136.
14. Cutcliffe, J. R., Hummelvoll, J. K., Granerud, A., & Eriksson, B. G. (2015). Mental health nurses responding to suffering in the 21st century occidental world: Accompanying people in their search for meaning. Archives of Psychiatric Nursing, 29, 19-25.
15. Coulehan, J. (2012). To suffer with: The poetry of compassion. In J. Malpas & N. Lickiss (Eds.), Perspectives on human suffering (pp. 227-244). Dordrecht, The Netherlands: Springer Science & Business Media.
16. Ellis, J., Cobb, M., O’Connor, T., Dunn, L., Irving, G., & Lloyd-Williams, M. (2014). Themeaning of suffering in patients with advanced progressive cancer. Chronic Illness, 11(3), 198-209.
17. Devik, S. A., Enmarker, I., Wiik, G. B., & Hellzèn, O. (2013). Meanings of being old, living on one’s own and suffering from incurable cancer in rural Norway. European Journal of Oncology Nursing, 17, 781-787.
18. Frankl, V. (1961). Logotherapy and the challenge of suffering. Review of Existential Psychiatry, 1, 3-7.
19. Frankl, E. V. (1992). Man’s search for Meaning: An Introduction to Logotherapy. Beacon Press: Boston.
20. Frank, A. W. (2001). Can we research suffering? Qualitative Health Research, 11(3), 353-362.
21. Fitzpatrick, S. J., Kerridge, I.H., Jordens, C. F. C., Zoloth, L., Tollefsen, C., Tsomo, K. L., &Sarma, D. (2016). Religious perspectives on human suffering: Implications for medicineand bioethics. Journal of Religion Health, 55(1), 159-173.
22. Gregory, D., & English, J. (1994). The myth of control: Suffering in palliative care. Journal of Palliative Care, 10(2), 18–23.
23. Kahn, D. L. & Steeves, R.H. (1986). The experience of suffering: Conceptual clarification and theoretical definition. Journal of Advanced Nursing, 11, 623-631.
24. Kilpatrick, K., Jabbour, M., & Fortin, C. (Processes in healthcare teams that include nurse practitioners: what do patients and families perceive to be effective. Journal of Clinical Nursing. 25, 619-630
25. Milton, C. L. (2013). Suffering. Nursing Science Quarterly, 26(3), 226-228.
26. Morse, J. M. (2001). Toward a praxis theory of suffering. Advances in Nursing Science, 24(1),47-59.
27. Nienimen, A-L., Mannevaara, B., & Fagerström, L. (2011). Advanced practice nurses’ scope of practice: a qualitative study of advanced clinical competencies. Scandinavian Journal of Caring Sciences.25, 661-670.
28. Nilmanat, K., Chailungka, P., Phungrassami, T., Promnoi, C., Tulathamkit, K., Noo-urai, P., & Phattaranavig, S. (2010). Living with suffering as voiced by Thai patients with advanced terminal cancer. International Journal of Palliative Care, 16(8), 393-399.
29. Pilkington, F. B., & Kilpatrick, D. (2008). The lived experience of suffering: A Parse research method study. Nursing Science Quarterly, 21(3), 228-237.
30. Rodgers, B. L., & Cowles, K. V. (1997). A conceptual foundation for human suffering in nursing care. Journal of Advanced Nursing, 25, 1048-1053.
31. Roy, C. (2009). The Roy adaptation model (3rd ed.). Upper Saddle River, NJ: Pearson Prentice Hall.
32. Ruijs, K. D.M., Onwuteaka-Philipsen, B. D., van der Wal, G., & Kerkhof, A. J.F.M. (2009). Unbearability of suffering at the end of life: the development of a new measuring device, the SOS-V. BMC Palliative Care, 8(16). doi: 10.1186/1472-684X-8-16
33. Schulz, R., Monin, J. K., Czaja, S. J., Lingler, J. H., Beach, S.R., Martire, L. M., & Cook, T. B. (2010). Measuring the experience and perception of suffering. The Gerontologist, 50(6), 774-784.
34. Wheeler, M.S. (2016). Primary Palliative care for Every Nurse Practitioner. The Journal for Nurse Practitioner, 12, 647-653.
2. Alkrisat, M., & Dee, V. (2014). The validation of the coping and adaptation processing scale based on the Roy adaptation model. Journal of Nursing Measurement, 22(3), 368- 380
3. Arman, M., Rehnsfeldt, A., Lindholm, L., Hamrin, E., & Eriksson, K. (2004). Suffering relatedto health care: A study of breast cancer patients’ experiences. International Journal of Nursing Practice, 10, 248-256.
4. Adunsky, A., Aminoff, B. Z., Arad, M., & Bercovitch, M. (2008). Minisuffering state examination: Suffering and survival of end-of-life cancer patients in a Hospice setting.
5. American Journal of Hospice &Palliative Medicine, 24, 493-498.
6. Baines, B. K., & Norlander, L. (2000). The relationship of pain and suffering in a Hospice population. American Journal of Hospice and Palliative Medicine, 17(5), 319–326.
7. Braband, B. (2009). The suffering journey: Lived experiences of persons who have endured life-impacting events. Doctoral dissertation. ProQuest, UMI Number: 3398508.
8. Baumann, S. L., Lee, O. J., & Im, S-B. (2013). Stories of suffering with leprosy and cancer in Korea. Nursing Science Quarterly, 26(3), 274-279.
9. Baumann, S. L. (2016). The living experience of suffering: A Parse method study with older adults. Nursing Science Quarterly, 29(4), 308-315.
10. Berglund, M., Westin, L., Svanström, R., & Sundler, A. J. (2012). Suffering caused by care-elderly patients’ experiences from hospital settings. International Journal of Qualitative Studies on Health and Well-being, 7, 18688.
11. Cassell, E. J. (1982). The nature of suffering and the goals of medicine. The New England Journal of Medicine, 306(11), 639-645
12. Chapman, C. R., & Gavrin, J. (1993). Suffering and its relationship to pain. Journal of Palliative Care, 9, 5-13.
13. Currow, D., & Hegarty, M. (2006). Suffering–At the bedside of the dying. Journal of Religion, Spirituality & Aging, 18(2–3), 123–136.
14. Cutcliffe, J. R., Hummelvoll, J. K., Granerud, A., & Eriksson, B. G. (2015). Mental health nurses responding to suffering in the 21st century occidental world: Accompanying people in their search for meaning. Archives of Psychiatric Nursing, 29, 19-25.
15. Coulehan, J. (2012). To suffer with: The poetry of compassion. In J. Malpas & N. Lickiss (Eds.), Perspectives on human suffering (pp. 227-244). Dordrecht, The Netherlands: Springer Science & Business Media.
16. Ellis, J., Cobb, M., O’Connor, T., Dunn, L., Irving, G., & Lloyd-Williams, M. (2014). Themeaning of suffering in patients with advanced progressive cancer. Chronic Illness, 11(3), 198-209.
17. Devik, S. A., Enmarker, I., Wiik, G. B., & Hellzèn, O. (2013). Meanings of being old, living on one’s own and suffering from incurable cancer in rural Norway. European Journal of Oncology Nursing, 17, 781-787.
18. Frankl, V. (1961). Logotherapy and the challenge of suffering. Review of Existential Psychiatry, 1, 3-7.
19. Frankl, E. V. (1992). Man’s search for Meaning: An Introduction to Logotherapy. Beacon Press: Boston.
20. Frank, A. W. (2001). Can we research suffering? Qualitative Health Research, 11(3), 353-362.
21. Fitzpatrick, S. J., Kerridge, I.H., Jordens, C. F. C., Zoloth, L., Tollefsen, C., Tsomo, K. L., &Sarma, D. (2016). Religious perspectives on human suffering: Implications for medicineand bioethics. Journal of Religion Health, 55(1), 159-173.
22. Gregory, D., & English, J. (1994). The myth of control: Suffering in palliative care. Journal of Palliative Care, 10(2), 18–23.
23. Kahn, D. L. & Steeves, R.H. (1986). The experience of suffering: Conceptual clarification and theoretical definition. Journal of Advanced Nursing, 11, 623-631.
24. Kilpatrick, K., Jabbour, M., & Fortin, C. (Processes in healthcare teams that include nurse practitioners: what do patients and families perceive to be effective. Journal of Clinical Nursing. 25, 619-630
25. Milton, C. L. (2013). Suffering. Nursing Science Quarterly, 26(3), 226-228.
26. Morse, J. M. (2001). Toward a praxis theory of suffering. Advances in Nursing Science, 24(1),47-59.
27. Nienimen, A-L., Mannevaara, B., & Fagerström, L. (2011). Advanced practice nurses’ scope of practice: a qualitative study of advanced clinical competencies. Scandinavian Journal of Caring Sciences.25, 661-670.
28. Nilmanat, K., Chailungka, P., Phungrassami, T., Promnoi, C., Tulathamkit, K., Noo-urai, P., & Phattaranavig, S. (2010). Living with suffering as voiced by Thai patients with advanced terminal cancer. International Journal of Palliative Care, 16(8), 393-399.
29. Pilkington, F. B., & Kilpatrick, D. (2008). The lived experience of suffering: A Parse research method study. Nursing Science Quarterly, 21(3), 228-237.
30. Rodgers, B. L., & Cowles, K. V. (1997). A conceptual foundation for human suffering in nursing care. Journal of Advanced Nursing, 25, 1048-1053.
31. Roy, C. (2009). The Roy adaptation model (3rd ed.). Upper Saddle River, NJ: Pearson Prentice Hall.
32. Ruijs, K. D.M., Onwuteaka-Philipsen, B. D., van der Wal, G., & Kerkhof, A. J.F.M. (2009). Unbearability of suffering at the end of life: the development of a new measuring device, the SOS-V. BMC Palliative Care, 8(16). doi: 10.1186/1472-684X-8-16
33. Schulz, R., Monin, J. K., Czaja, S. J., Lingler, J. H., Beach, S.R., Martire, L. M., & Cook, T. B. (2010). Measuring the experience and perception of suffering. The Gerontologist, 50(6), 774-784.
34. Wheeler, M.S. (2016). Primary Palliative care for Every Nurse Practitioner. The Journal for Nurse Practitioner, 12, 647-653.
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